Community Health Charities of Florida - April 2011

When she was only 18 months old, Chaeli underwent quite an ordeal as doctors tried to determine why she was not growing properly. After tests that caused internal bleeding and other problems, her parents took her to Vanderbilt University where it was discovered that Chaeli had a bleeding disorder called von Willebrand’s Disease.

Now, at three years old and despite still being petite for her age, Chaeli is doing well and enjoys playing with her purple Barney dinosaur and her big sister Cassie. A treatment center in Lexington, KY is taking good care of her medical needs, while the Kentucky Hemophilia Foundation provides important information and a support network of parents whose children also have bleeding disorders. The parents share experiences, treatment options and advice with one another. Chaeli’s mom says, “We are so thankful for the support system at the Foundation and for all of their help answering the many questions we have had. It’s also helpful to know that we are not alone and others are going through this as well.”

National Hemophilia Foundation's mission is to help people with hemophilia and inherited bleeding disorders by providing education, advocacy, support services and promoting research toward a cure.  Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, like yourself.
 
For information about the Hemophilia Foundation of Greater Florida, click here.

Click here to watch a video podcast about Hemophilia.